The Affordable Care Act
The Patient Protection and Affordable Care Act (ACA) was signed into law by President Obama on March 23, 2010. It was upheld by the Supreme Court on June 28, 2012. The law is designed to increase coverage, improve benefits, and provide important new insurance protections for all Americans. Please use the links below to find out more about the Affordable Care Act and the Health Insurance Marketplace.
Where can I find more information about the Health Insurance Marketplace?
For a quick rundown of the most important things to know about the Marketplace visit “Get Covered: A one-page guide to the Health Insurance Marketplace”
Where can I find help locally?
The online “Local Help” function is available. Input your geographic location to identify local in-person assistance locations.
Where can I find more information about the Affordable Care Act?
Visit the Kaiser Family Foundation list of Frequently Asked Questions (FAQ’s) to help better understand the ACA.
Visit the governments’ health care website that has lots of information about the Affordable Care Act:
Where can I find more information about the Affordable Care Act and its impact on children and youth with special health care needs?
The Catalyst Center is a national center dedicated to improving health care coverage and financing for Children and Youth with Special Health Care Needs (CYSHCN).
Care Coordination Training: Empowering Families
When it comes to getting medical care for their child, the role of the parent is an important one. Often the parent has to work with many different people in addition to doctors. This training curriculum was created as a result of the R4 Care Coordination Workgroup. The purpose of the training is to provide parents with the skills, knowledge and resources they need to coordinate care for children with complex needs in partnership with a medical home. Parents of children with genetic conditions will learn advocacy skills, techniques to organize information and find reliable resources, navigation of health care and insurance systems, skills to increase communication and coordination between multiple providers, and methods for coping with stress. In 2013, the pilot trainings are being conducted to see if goals for the training and to gather input from parents on how we can improve the training. After the training, Region 4 will revise the curriculum and identify partners interested in working together to provide the training to other parents within the region as well as nationally. For more information, please contact the Region 4 Parent Coordinator, Kristen Hawkins at firstname.lastname@example.org
Partnering with your Doctor: The Medical Home Approach is a guide to help families connect with their doctor, other medical professionals, and caregivers through a medical home. The guide is intended to be a user-friendly, hands-on tool to support families to move forward in obtaining and providing a medical home for their child. The guide provides definitions, examples, and tools to use when working with a doctor to develop a medical home and demonstrates how to seek culturally effective, compassionate care. It also provides a list of resources and links to organizations that support families and the medical home concept.
Transition Web Application:
Transition is a process…not an event, and should involve the family as well as anyone else who provides support and assistance to the youth. Region 4 has created a web application to assist young adults, parents and caregivers and providers, with transitioning to adult care particularly as it pertains to youth with special health care need due to a genetic condition. The easily accessible videos, tools and resources are provided specifically for Youth, Parents or Caregivers, and Providers, as well as general resources for anyone interested in learning about the transition process.