Thanks to all Stakeholder Meeting attendees! Each state meeting brought together healthcare professionals and families to share the projects and products coming out of the Region.
Presentations highlighted our Priority projects, workgroup happenings and any state-specific programs or projects related to the Region 4 mission and objectives. Meeting attendees also engaged in discussions around potential projects and happenings in the Region, as well as sharing ideas to address the challenges around areas of emergency preparedness for those with genetic/metabolic conditions and reimbursement.
Click here to view the Meeting Agenda and Presentations from each state:
Illinois
Indiana
Kentucky
Michigan
Minnesota
Ohio
Wisconsin
Also, during each state’s meeting, staff met with parents to discuss their opinions on how having a child with a genetic condition affects family functioning.
Click here to view their feedback.
