A guide for families with children who have genetic conditions

A "medical home approach" is simply having a home base for a child's health care needs and is a relatively new way of thinking about healthcare for children with special needs.  It is not a specific place, but instead is an approach and way of thinking about obtaining family-centered care that has been shown to benefit families of children born with genetic conditions.  Parents can think of this as a "family-doctor partnership " that can  help them to get the best care possible for their child with special needs.  We are inviting families, support groups, advocacy groups, doctors, hospitals, clinics and public health officials to download this user-friendly toolkit packed with templates, parent advice, concept examples and tips, for free.

Download the Guide here:  Partnering with your Doctor: The Medical Home Approach