CH 3-Year Follow-Up

Based on data from the Michigan pilot study,a surprising number of children diagnosed with CH during the newborn period are no longer being treated for CH at three years of age without re-evaluation. The CH workgroup will expand the efforts of the Michigan pilot. This will include refining the surveys to ensure collection of sufficient information to understand why children diagnosed with CH are no longer receiving treatment; expanding data collection efforts to include all seven Region 4 states; and preparing and disseminating CH follow-up guidelines to be used by state follow-up programs. It is anticipated this project will result in 1) improved follow-up of children diagnosed with CH; 2) increased knowledge of families and primary care providers about the importance of continuing treatment until re-evaluation; 3) more children
being re-evaluated at age three; and 4) a reduction in the number of children whose treatment is discontinued without
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