The Region 4 Genetics Collaborative Regional Meeting took place May 3-4, 2005 at the James B. Henry Center, Michigan State University, Lansing, Michigan.

Photo Gallery

This meeting brought together over 75 collaborative partners from all of the project clusters to participate in collaborative activities. Participants received up dates and best practices information through plenary sessions and concurrent discussion sessions. Clusters and working groups met in 3 working sessions to review priorities, finalize logic models, identify strategies and develop a comprehensive plan to be implemented in project years 2 & 3.

For more information on the working sessions, please click on Newborn Screening by MS/MS; Clinical Diagnosis & Management; or Public Health Infrastructure. From the Public Health Infrastructure link, you will need to select the working group(s) of interest.

Special thanks to our plenary session speakers and our Concurrent Discussion Group Leaders:

• Jeffrey Taylor, PhD
  Michigan Public Health Institute
• Jean Chabut, MPH, Public Health
  Michigan Department of Community Health 
• Michele A. Lloyd-Puryear, MD, PhD
  Maternal & Child Health Bureau
  Health Resources and Services Administration
  Regional Genetics and Newborn Screening Collaboratives 
  Summary: An overview of Heritable Disorders Program and each of the Regional Collaboratives involved in the project
  Family Histories
• Michael Watson, PhD
  American College of Medical Genetics
  Collaboration Among Regions
  CPT Codes
• Kathleen Bachmann, Sandra Bulcher, James Critchfield, Darin Erickson, and Jason Heflin
  Consumer Panel: The Family Experience
• Ngozi T. Robinson, MS
  Genetic Alliance
  Support Groups in Action: Serving Individuals Diagnosed with Genetic Conditions
• Susan A. Berry, MD,
  University of Minnesota
  Medical Management Protocols and Investigations: A discussion
  Summary: Discussion of the Development of Management Protocols for Inborn Errors of Metabolism such as MCAD
• Nina Antoniottie, RN, MBA, PhD
  Telehealth: “The Jetsons Have Arrived!”
• Charles Onufer, MD
  Division of Specialized Care for Children
  Medical Homes for Children Who Fail Metabolic Screening
• Bob Cook, Family Member
  Division of Specialized Care for Children
  Medical Homes for Children Who Fail Metabolic Screening
• Gary Hoffman
  Wisconsin State Laboratory of Hygiene
  Newborn Screening: Past, Present, Possibilities
• Carolyn Anderson, PNP, MSPH
  Minnesota Department of Health
  Care Coordination in Newborn Blood Spot Screening
  Summary: Minnesota's Model for Short Term Follow-up 
• Piero Rinaldo, MD, PhD
  Biochemical Genetics Laboratory, Mayo Clinic
  Minnesota’s Model for Short-term Follow-up
• Rich Pauli, MD, PhD
  Waisman Center
  University of Wisconsin-Madison
  Collaborative Clinical Research in Region 4
• Janice Bach, MS, CGC
  Michigan Department of Community Health
  The Region 4 Genetics Collaborative
  Summary: Overview of the Region 4 Genetics Collaborative
• Claudia Nash, MS
  Illinois Department of Public Health
  Cluster 3 Public Health Infrastructure
  Summary: Update on Grant Progress in Cluster 3