Community Partner Search

Welcome to the Community Partners page. Here you can submit information about your organization or search our community partner directory below. Click here to submit a Community Partner Profile.

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Community Partner Profiles


Baebies, Inc.

615 Davis Drive, Suite 800, Durham North Carolina 27709


919-891-0432

Organization Type: National

Description: Baebies is guided by the vision that “everyone deserves a healthy start”. Baebies is saving lives, making lives better, and enabling easier access to testing for babies around the world by delivering a new paradigm to newborn screening. Baebies is bringing new technology, new tests, and new hope to parents and healthcare professionals worldwide. Baebies is headquartered in Durham, NC.

Services Provided:
Clinical
  • Primary Care
  • Genetic Counseling
  • Genetic Testing
  • Hematology
  • Endocrinology
  • Other Clinical Based Organization: Newborn Screening
  • Professional Development for Clinicians
  • Parent Training
  • Professional Development for Laboratorians
  • Other Education Based Organization:
  • Newborn Screening
  • Genetics/Genomics
  • Birth Defects
  • Title V
  • Other Public Health Based Organization:
  • Purchaser/Paye
  • Patient Navigation
  • Care Coordination/Case Management

Michigan Family to Family Health Information Center

2440 Woodlake Circle Suite 100, Okemos Michigan 48864


5173247396

Organization Type: State

Description: Michigan Family to Family Health Information Center (MI F2F) provides information and education on disability and health-related issues to families of children and youth with special health care needs (CYSHCN) and the professionals who serve them. They provide families with the tools to make informed decisions and encourage and help build partnerships between professionals and families to improve quality of services for children and youth with special health care needs. MI F2F website provides information and resources to assist families with finding the health care services and supports they need and help families avoid or overcome barriers to care for their children. MI F2F also works with professionals and families to improve children’s health policies and programs in ways that help families.

Services Provided:
  • Primary Care
  • Genetic Counseling
  • Genetic Testing
  • Hematology
  • Endocrinology
  • Other Clinical Based Organization:
Education
  • Professional Development for Clinicians
  • Parent Training
  • Professional Development for Laboratorians
  • Other Education Based Organization:
  • Newborn Screening
  • Genetics/Genomics
  • Birth Defects
  • Title V
  • Other Public Health Based Organization:
  • Purchaser/Paye
  • Patient Navigation
  • Care Coordination/Case Management

The Ohio Sickle Cell and Health Association, Inc

341 South 3rd Street, Suite 200, Columbus Ohio 43215


614-228-0157

Organization Type: State

Description: Incorporated in 1979, Ohio Sickle Cell and Health Association was established from the need to provide a payment mechanism for adults with Sickle Cell Disease who were medically indigent; with the focus and intent to solve sickle cell disease in the context of broader societal issues facing Ohio’s children, minorities and poor. Our Mission To provide statewide education, awareness, advocacy and support to individuals and families affected and at-risk for sickle cell disease. Vision The Ohio Sickle Cell and Health Association shares a national vision where individuals living with Sickle Cell Disease are treated with respect and dignity and have the opportunity to lead quality and productive lives. Our Goals To educate and inform the professional and lay communities about the sickle cell phenomena and other minority health issues. To develop support for affected individuals and families. To serve as a resource base to sickle cell programs in Ohio. To increase awareness of the plight of the sickle cell phenomena.

Services Provided:
  • Primary Care
  • Genetic Counseling
  • Genetic Testing
  • Hematology
  • Endocrinology
  • Other Clinical Based Organization:
Education
  • Professional Development for Clinicians
  • Parent Training
  • Professional Development for Laboratorians
  • Other Education Based Organization: Public Awarness, Advocacy
  • Newborn Screening
  • Genetics/Genomics
  • Birth Defects
  • Title V
  • Other Public Health Based Organization:
  • Purchaser/Paye
  • Patient Navigation
  • Care Coordination/Case Management

1 

Vision

All newborns will receive state-of-the-art newborn screening and follow-up; children and youth with heritable disorders will have access to genetic expertise and coordinated care in the context of a medical home.

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