Resources for States

Advisory Committee on Heritable Disorders in Newborns and Children: Medical Foods for Inborn Errors of Metabolism: Issues in Patient Access (2016)
This PowerPoint presentation from the Office of Dietary Supplements, NIH reviews the history of medical food statutes in the U.S., an over view of medical foods, a review of the barriers to access and reimbursement, previous activities to improve access, and ideas for moving forward.

American College of Medical Genetics and Genomics Press Release: ACMG Efforts Lead to AMA’s Support of Health Coverage for Medical Food Products (June 16, 2016)
This press release summarizes ACMG and AMA support of Health Coverage for Medical Food Products.

American Medical Association Resolution 122: Health Coverage for Nutritional Products for Inborn Errors of Metabolism

NORD Press Release: NORD Applauds Senate for Authorizing Medical Foods Coverage for the Military in National Defense Authorization Act (June 16, 2016)
This press release reviews the Senate Authorization of medical foods coverage by Tricare in the Military National Defense Authorization Act for fiscal year 2017.  This bill became law on 12/23/2016 and can be accessed here (https://www.congress.gov/bill/114th-congress/senate-bill/2943). 

Newborn Screening Policy Brief by Michigan Department of Community Health
Provides an overview of enteral formula treatment for inborn errors of metabolism and outlines insurance policy language that should be used to reflect current standards of medical practice.

Diet for Life Workgroup Report: Proposed Strategies 2013-2014
Provides a summary of the coverage of medical foods and formula in Michigan, current costs and cost projections in future years.  Presents seven core components of a potential model to assure a comprehensive approach to Diet for Life nutritional treatment for Michigan residents with inborn errors of metabolism along with possible strategies to implement each component.

NORD 2015 State Policy Progress Report: A Road Map for State Improvement
This 2015 Progress Report from NORD focuses on four key policy areas including coverage of medical foods in private and publicly-funded health plans.

HRSA: State Statutes and Regulations on Dietary Treatment of Disorders Identified Through Newborn Screening (2012)
This report from the Advisory Committee on Heritable Disorders in Newborns and Children provides a summary of state statutes related to coverage of medical foods and formulas.